Back in the Saddle for IMLP 2009

It has been a while since I updated this, about 5 months to be exact.  Hard to find time to put your thoughts and updates on a page when you spend your time chasing two girls under 4 years old.  And now that Ironman training is in full swing again, it is even harder to find the time. But, the updates will begin again, and with more frequency, because I am doing Ironman Lake Placid to support an important organization, Minute Man ARC for Human Services.  As many of my friends know, and probably many more don’t know, my daughter Hailey was born with a rare chromosomal condition called Trisomy 13 mosacism.  Without going into the genetics (I got a C in high school biology), we are all Hailey eating popcorn at Minute Man ARC Walksupposed to have 46 chromosomes, with each set of 23 being an exactly duplicate of the other.  When that doesn’t happen, things can go wrong. How wrong they go depends.  Sometimes it can end in miscarriage.  Other times babies can die shortly after being born. They can be plagued with a variety of congenital defects and developmental delays.  Or the anomolies can be relatively unnoticeable.  It all depends, and there can sometimes be no way of knowing what the impact is going to be.

We were lucky in that we found out relatively quickly that some of Hailey cells have an extra 13th chromosome.  Since this was found through a blood draw, we don’t know if this is limited to her ‘blood line’, or extends to other parts of her body (I said this was complicated stuff).  Anyway, the upshot is that because we found out right away, we were able to begin to receive services from a wonderful organization called Minute Man ARC, which provides a range of assistance to families and people that are in needed of extra help in learning and doing many of the things that most of us take for granted.  Like most organizations that do good work, they are underfunded.  So, I decided to take on IMLP one more time (I swear just one more time) to raise money for them.

So far, the training is going well.  I hit about 23 hours of total training time last week, which breaks down to around 4 hours of swimming, 12 hours of biking, and 7 hours of running.  This week will be a bit of a minor recovery and travel week, and then ramping things back up to 20+ hours again.  The goal for time is to be last year’s 10:38. The more important goal is to raise money for Minute Man ARC.  So, if you are so inclined, you can go to and make a donation.  The money you give will go a long way toward directly providing assistance to those who are very much in need.

Amelia and Hailey at Easter

Amelia and Hailey at Easter


One response to “Back in the Saddle for IMLP 2009

  1. Know what goals you feel are appropriate for your child. ,

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )


Connecting to %s